Tag Archives: Ice Bucket Challenge

ALS and the Ice Bucket Challenge

So last Saturday I posted a little bit about the Ice Bucket challenge because Disney CEO Bob Iger and Robert Downey Jr both participated and it made me so happy. Now it seems to have exploded across the Internet and especially with celebrities. Every day more and more are participating in the challenge. It has been amazing to see the people who actually talk about the disease to try and bring a little awareness. In reality I wonder how far in education this really goes, but if nothing else the millions of dollars that have been raised is nothing to laugh at.

Part of the reason this is the post that I am doing for tonight is that David and I just got back from a memorial service for a dear family friend who passed away from ALS. They had been struggling with the disease for 5 and a half years and the toll it has taken on the person, the friends, and their family has been immense. I know the family very well because I grew up living across the street from them and was a frequent baby sitter to their children. ALS is such a devastating disease and the service we went to tonight is a reminder of how much it takes away. It is not just that the person whom you love is potentially dying because death is honestly not the worst outcome. You end up trapped in your body, possibly unable to communicate. Our dear friend was lucky that they could still communicate in some way almost to the end.

The back page of the memorial service bulletin was an ice bucket challenge that people are doing in our friend’s memory. Now David and I are not ourselves participating in the ice bucket dumping part of the challenge because we won’t be available. Instead we will be donating to the ALS Association at http://alsa.org. If you have participated in the challenge good for you, but please remember that passing the information along and donating are the two main points. This disease is so unpredictable and that is part of what is so devastating about it. After the jump see what other celebrities have participated in the challenge! Continue reading

This Should Not Amuse Me So Much

Okay as a caveat, I am generally very skeptical of the challenge for charity that has been starting up. In some ways it is a good one time fundraiser that probably does not take much effort because it passes itself along. At the same time I don’t think it is the best way to push for awareness about the issues because it is just saying I am giving money to this charity or doing x, y, or z. Lately there has been a challenge going around for ALS awareness called the ice bucket challenge. The idea is that you are supposed to either give $100 to an ALS organization or dump a bucket of ice water over your head. This is kind of a brilliant idea during the summer and I think you probably get a lot of people doing the challenge and giving money to the organization. Again, great fundraiser idea, but not a long lasting change.

Now with this recently we have gotten politicians and celebrities involved in the challenge, which is great because it brings more sharing and more money in to these organizations. I particularly appreciate the ALS challenge because I actually have a personal connection to two different people affected by the disease. Now recently I found the following video of Disney CEO Bob Iger doing the Ice Bucket Challenge.

To my delight he nominates Olivia Pope, Peter Quill, and Tony Stark. I was greatly amused that he nominated the characters and not the actors themselves. Now it also makes sense because all of these characters are connected to Disney in some form or the other. The Peter Quill and Tony Stark were more my favorites. See if anyone answered the call after the jump. Continue reading